The same tests carried out in diagnosing fatal familial insomnia are used to determine the presence of sporadic fatal insomnia. People need to believe you - I get no support -hoping you can find some.How is sporadic fatal insomnia diagnosed? Try all the conservative approaches, and if you have the energy - talk to a doctor about this lengthy period without sleep and see what is recommended. The kind of sleep that ‘restores’ the body is contributing to. But I do know that I have developed extreme panic, and GI issues, severe pain snd even cancer - yes cancer- all related to a weakened immune system that lack of sleep If there is a fatal insomnia, I don’t know what the fatality is. I wish that there were some single solution. I do not think you are being dramatic or are a hypochondriac. I can also understand why some in your household perceive you to be asleep when only you know you are vigilant all night. Anxiety and fear and for me severe pain snd lying in bed all the time, simply are more powerful than sleep meds. I have not slept in years- and have been given many sleep meds- they might work for a few hours and then they stop. I can fully understand the fear of thinking, after months of not sleeping, that is is an extreme form of insomnia. not like fatal insomnia like I'd convince myself for years.Īs other very smart people posted, if you're really that worried about it, go see your doctor. So my lifetime insomnia is due to PTSD anxiety depression and borderline personality disorder. I was sleeping but not two or three hours at a time 30 -40 minutes maybe sometimes an hour when I get so exhausted I'd pass out but you know what¿ you can obsess over the app that comes with your Fitbit to see how much you've been sleeping or not sleeping. but guess what? I put that Fitbit on and it told me exactly when I was sleeping. I was burnt out and thought it was all due to the lack of sleep, the lifelong insomnia. You know what this may not help you but it's helped me I have the exact same issues and I have mental health issues and oh all that good stuff but I thought I was never sleeping the last two years I told everybody I never sleep I don't get any sleep and guess what my sister bought me a Fitbit you know the health monitoring device (smart watch). I’d be happy to chat more with sleeping problems, but definitely seek some medical advice. You just gotta take the steps and try to keep a healthy mindset. You have a condition, which can be alleviated with the appropriate care. Try not to go to the extreme of thinking you have fatal insomnia, and just settle with having insomnia. My best advice is to book an appointment with someone that actually knows how to help you. But until you start really looking after yourself and speaking to a professional, you probably won’t get the answers you’re looking for here, or from your family. Am I a doctor or a specialist? No chance. Are you a doctor or specialist in this area? I have no idea. Could you have insomnia? Yeah, sounds like it. What I’m getting at here is that I highly doubt you have fatal insomnia due to how rare it is. I was diagnosed and prescribed medicine that’s completely changed my quality of life. He was already aware of my situation, my habits, and my “sleep hygiene” and saw I was in a bad situation. They gave me some medicine to get some sleep, then I made an appointment with my primary physician where we discussed my sleeping issues further. After a bit of a psychotic break, well, a three day period where I had zero sleep whatsoever, I ended up in an urgent care looking and feeling crazy. This was after years of being “bad at sleeping.” I learned to live with that misery for a long time. I was diagnosed with Chronic Onset Insomnia about two years ago.
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